fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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The Quest of a Lifetime

Editor’s Note: This piece was awarded an honorable mention in the Pulse writing contest, “On Being Different.”

From a young age, we’re encouraged to stand out—to be who we truly are and to be proud of that person. We strive to understand both our strengths and our weaknesses. In doing so, we’re driven to move forward, knowing we’re doing our best. But sometimes we get stuck in a rut and can’t find our way. That’s where my story begins.

In the mid-Seventies, at age sixteen or seventeen, I was diagnosed with a genetic disorder called Klinefelter syndrome. There were no computers or internet, which meant no easy access to medical knowledge. Living in rural Northern Michigan complicated matters further. Our small town had no medical specialists, and medical journals

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