fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: end of life

When the Phone Rings at Night

“I’m at the hospital,” my mother said.”Talk to the neurosurgeon.”
The ringing phone had roused me out of a deep sleep. Already, my heart was racing, and I was wide awake as the doctor began to speak.
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Halloween Heartache

It was one hour past midnight, late enough that even the college students who lived in the apartment building across the street had changed their Halloween costumes for pajamas, turned off their lights and fallen into a sugar-induced sleep. I lay in bed, remembering the Halloweens of my youth when Dad and I had gone trick-or-treating together. He had protected me from the goblins, witches and ghosts that had roamed the streets of our neighborhood, and I had shared with him some of the candy I accumulated.
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His Favorite Time

 
I had known since the beginning that it would happen at night, his favorite time. He had always preferred the peace of darkness to the bustle of day. How many times had I woken up to find him still working at his desk? How many times had I left for work in the morning shortly after giving him a good-sleep kiss?
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The Baby Monitor

 
My parents slept together in the room next to mine for the last three years. They passed away this spring within three weeks of each other.
 
I invaded their privacy at night because I was so afraid I’d miss them gasping for breath or crying out in pain. I bought a baby monitor. 
 
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The Stroke of Midnight

 
As a member of a youth ministry team, I was sleeping on the floor of a church gym. My brothers knew I was in there, but they couldn’t find a way into the building. They went from door to door without a flashlight, using the building’s limited exterior lighting and finally locating a door that someone, by chance, had forgotten to pull tight and lock. Whether by stroke of luck or stroke of Providence, they were just as surprised as the chaperone sitting by the door when they pulled on the handle and the door swung open with a rush of cold November air.
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New Widow

Wind scatters leaves as I approach the house.
The geranium he hung lies on the floor.
The same porch board’s loose. The coir mat sheds.
I fumble for the key and push at the door
that opens to guitar amps, music books
and cardboard boxes left by the man
who asked me not to touch his clothes
or toss the newspapers till he came home
from the hospital, sorted through the stuff
once and for all to organize his life.

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Nunc dimittis

 
My father, a pathologist, was diagnosed with late-stage gastric cancer soon after I was married. He knew exactly what the diagnosis meant, but he enjoyed life for another two years. Then he stopped responding to treatment and began to decline over the winter. He and my mother were happy to learn I was pregnant with their first grandchild, due in June.
 
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A Wish Fulfilled

 
Once age and declining health prevented my mother from continuing to work as a salesperson in a local children’s furniture store, something she had done for 41 years, she began to pray that she would die.
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Race in the Advance Directives Conversation

 
Much of my work as a Palliative Care physician involves conversations with patients and their families for whom the medical outlook is bleak: to help them receive the treatment they want, not more and not less. Such discussions are best held in tandem with the primary medical team and with the nurse. Many times, both attending doctors and housestaff have said, “But it’s so much harder to get a DNR (Do Not Resuscitate Order) with African-American families.”
My experience differs.  
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Lipstick

 
My mother’s scent, Replique, always entered my bedroom an instant before she did. The message my nose carried to my brain, then on to my heart, was “She’s going out tonight.” 
 
She would first sit on the edge of my mattress. The comfort of her nearness would always be overshadowed by the sadness that I knew would overtake me once she left me alone. But we both pretended it didn’t matter. She’d say all the requisite things like “Sleep tight” and “See you in the morning” and “I love you.” And then she would kiss my hand and be gone–leaving behind a waxy, deep-red imprint of her lips, pressed onto my skin. 
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Butterfly Wings

 
Like the wings of a butterfly, Ma’s hands were always in motion. Making beds with perfect hospital corners. Gliding the iron across Dad’s shirts. Breading veal chops and turning dough into chocolate chip cookies. Washing dishes and clothes. Vacuuming and dusting. Ringing up sales at the children’s store where she worked.
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2:00 am

Katie Lin

It’s 2:00 am, and the fluorescent bulbs flicker gently overhead along the quiet hallways of the intensive-care unit.

Tonight I’m the ICU resident on call, and the weight of that title sits heavily on my shoulders. My team is in charge of keeping our critically ill patients safe from harm overnight. Although the supervising physician is only a phone call away, I’m the acting team lead for any codes called during the night on patients elsewhere in the hospital who may need our life-support services. Code Blue: cardiac arrest. Code 66: anything else requiring assistance.

The metronomic beeping of the life-support machines keeps time as I blink the weariness from my eyes and share a few muted smiles with the

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