fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: end of life

All I Could Do

Leigh B. Grossman ~

The clinic in rural Haiti is a small stucco building with no electricity or running water. The temperature inside the clinic is 103 degrees, and there is no breeze. The examining-room walls are only seven feet high and afford no privacy.

This is my fourteenth trip to Haiti as a volunteer pediatrician. My twenty-fifth patient of the morning is a three-month-old infant named Joceylyn Marquee, who is completely swaddled in a dirty blanket and is carried in by her mother, Lucie.

In our tiny cubicle, Lucie sits with Joceylyn on her lap. The interpreter, Fredeson, and I are also seated. We’re all so close together that our knees touch. The acrid smell of human dirt, sweat and anxiety

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What Did the Doctor Say?

Charlotte Grinberg ~

Here’s what they should have told you: “We found cancer in your lymph nodes, your liver, your lungs and your brain. It explains your weight loss, your difficulty breathing and your loss of appetite. This wasn’t just your depression, like you thought. It started in your lungs, and now it’s everywhere. This cancer has been growing for quite some time. You cannot, even with the strongest medications and the longest surgeries, make this cancer disappear. It is too powerful. It is here to stay.”

They should have said, “We wish we had better news, but it looks very serious. Still, we’re here to care for you. We will not let you feel alone. Imagine the place you want to spend

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Tucking Him In

Peggy Murphy ~

I need to see Justin before my workday commences. I’m a social worker at the outpatient cancer center where Justin has been treated for an aggressive colon cancer.

Seeing him today means visiting him in the hospital, up the road from the center.

It’s almost surreal.

When I first met Justin, nearly two years ago, he looked every bit the linebacker–well over six feet tall, with a girth to match. A man in his late fifties, he had a booming voice and an engaging personality. He was married, a successful wining-and-dining stockbroker, active in his town and in the local Italian American Society.

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What They Don’t Tell You


Meg Lindsay ~

After 10 days in a hospital
you regain the ability
to walk albeit with a cane so I put the commode
out in the hall as you are laughing a bit more,
the gleam back, but the chemo starts
and the next morning again pain
in your ribs and sternum
and now it burns
in your chest and again you
can’t make it up the stairs.
A spasm and your body folds into itself,
into the sign of the crab.

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The Man Who Handed Me His Poop

In broken English, against the backdrop of the emergency department’s chaos and clatter, Mr. Simon relayed his story: unintentional weight loss, gradually yellowing skin, weeks of constipation. He punctuated his list of devastating symptoms with laughter–exaggerated but genuine guffaws.

Over the next few days, as the medical student responsible for his care, I was also responsible for handing him piece after piece of bad news. An obstructing gallstone in his bile duct. Actually, an obstructing mass. Likely a malignancy. Chemo. Radiation.

With each update, he would grin. And then he would laugh.

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Where She Will Be

Francie Camper ~

City snow blankets my little mother in her hospital
bed in her bedroom, no wonder she is confused,
pointing to things in the air, on the ceiling that only
she can see. She might be hailing a cab. She raises
her head to tell me, Four members of the Isenberg
family came to visit and one was Mima Ettel,
who is already buried in the plot and she doesn’t
seem to know this. A land of the living and a land
of the dead, why should she have to remember
the difference? We paid a thousand dollars to move
her grandfather’s monument to make room for her.

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Remembering the Beginning


Jacqueline Dooley ~

I was unprepared
for the feel of your hair pulling free
with every brushstroke.
I wasn’t up to autumn
from the side of your hospital bed.
It seemed too much
for the universe to ask.
But, like you, I was choiceless
as I drove through November streets
the colors, drained and faded,
like your face when the chemo went in,
reduced to nothing more
than what I was when you were born.
I covered your exposed head.
I tried to stop your tears.

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Deadlock

Zachary Reese ~

“Does a rock float on water?” I asked the haggard woman lying in the ICU bed.

I was an intern, in the first rotation of my medical residency, and Mrs. Jones had been my ICU team’s patient for the past week. Over that time, she’d looked more and more uncomfortable, constantly gesturing for her breathing tube to be removed.

Mrs. Jones tried to form words in response to my question, but the plastic tube in her mouth prevented it. Her chest rose and fell in rhythm with the ventilator’s hiss as the machine pumped air into her lungs; her muscles were too weak to do the work themselves.

After several attempts at speaking, she gave up

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The Morning After You Died

Dianne Avey ~

So this is what it feels like
to be on the other side.
Hollowed out exhaustion,
rimmed with the chaotic clutter
of struggle and hope.
Like the beach after a tsunami,
all those once-important items,
now floating around uselessly.

I don’t know how to start this life
again.

This morning, they came
and took the bed away.

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Fear No Evil

Scott Janssen ~

“You need to get here now!” The nurse whispers anxiously. It’s after midnight. One of our hospice patients has just died at home, and her husband is threatening to shoot himself when the funeral home shows up.

“Has the funeral home been called?” I ask.

“No.”

“Does he have a gun or weapon?”

“We’re out in the country. There are deer heads on the wall.”

I try not to stereotype, but deer heads are a giveaway. There are probably lots of guns.

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Epilogue

Sara Bybee ~

It’s 2:02 pm when my pager beeps. I pull it out and read: “Juan may have just passed. Going in now.”

As a social worker in the region’s only cancer specialty hospital, I provide emotional support for patients and their families–including talking about their wishes for end-of-life care.

Juan is a sixty-five-year-old Ecuadorian man with stage 4 pancreatic cancer. I’ve known him for about a year. Polite and easy to talk to, he often listens to Spanish sermons as he walks through the halls, IV pole at his side.

Over the months, we’ve grown close. He’s told me about his life in Ecuador, his first job (delivering pizza) and how proud he is of his children. I’ve met

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Native Ways

Jan Jahner ~

They came up from the center of the earth, The People
where sky speaks to corn,
speaks to cottonwoods, to runoff in the wash.
Living beneath black-slashed canyon walls
home to sheep and weavers.
He is one of them, my patient
one of the ancients; leathery face carved and quiet
she is his daughter, fingers on the covers,
ready should he wake.

He is dying and we can’t say it.
Soft sounds unknown to me, their language of wind, cottonwood and wool
in the center of this circle is knowing and not saying
the medicines continue
but we turn, bathe, suction and weave the fibers close.

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