fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: death and dying

Two Timelines

Timeline One

Day 1: For over thirty-five years my strong, spirited spouse, Carlo, served around the world in the Air Force. Now retired from the military, he still serves at the air base as a civilian security police officer.

His neck hurts. A lot. He blames the pain on the unbalanced weight of the bulletproof vest that Uncle Sam added last year to the uniform he proudly wears every day.

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Imperfect Farewells

Judy Schaefer

I was not with my mother when she died, her heart bursting
against her ribs, screaming for a violent release from her chest
I listened, ear to phone:           nothing-more-could-be-done
          I recall her now, prayer petals of morning’s first red rose, the perfect
          Mezzo-soprano of a summer evening’s lullaby, an open window to song
Clinical colleagues reported massive myocardial infarction
I reported that I was an orphan

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Busting Grandma Out

S.E. Street

I had been in London on business all of seven hours when my son, Tom, called me at two in the morning from our hometown, Sydney, Australia. 

“Grandma’s had a fall. She’s been taken to the hospital, but she’s all right.”

My mother’s having a fall was nothing unusual; she had always been an unpredictable fainter. My husband and children and I called it her party trick, making light of it to soothe her embarrassment. 

She had no recollection of these episodes; one minute she’d be seated at the table, and the next, she’d be lying on her back on the floor, her feet propped up on a chair, with the family smiling down at her as if she were Sleeping Beauty awakening

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Fateful Encounter

Amy Eileen Hiscock

I cannot take my eyes from his face.

It has been destroyed in the wreck, along with the rest of his body. His head is misshapen, bloodied. Someone has tried to staple together one of the larger lacerations–extending diagonally across his face and under his chin–but there was little point. They gave up partway through.

I have never seen a dead body. I am twenty-five and in the second of five terms of nursing school. 

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Last Rites

Candice Carnes

In 2002, I was living in Albuquerque and working as a nursing assistant. My staffing agency had assigned me to a medical surgical floor at a hospital in Santa Fe, a fifty-minute drive away.

One day, as I was enjoying the high-desert beauty en route to the hospital, a code was called.

The patient’s name was Sam, as I recall. It could have been anything, but Sam is the name that echoes in my memories of that day.

His heart stopped.

I hadn’t arrived at the hospital yet, but I had been involved in enough codes to know what had been done.

Despite his advanced age, Sam had full-code status with no restrictions, meaning that he or his family had wanted everything

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Lightheaded

Ellen Cole

Lightheaded, as I so often am
when leukemia fevers sweep over me,
I fail to notice when I begin to rise,
feet bidding the floor goodbye,

I say, Brian, but you,
your eyes shut,    
Beethoven’s Moonlight Sonata
whispering in your earphones,

do not see me wink out the window
like lamp light, the lawn glittered
with glow-worms, echoed above
by the stern slow music of stars.

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The Pros and Cons of Living with a Terminal Illness

Ellen Diamond

Before I retired in 2000, I worked in a state agency as a peer counselor, or more formally, an employee assistance program (EAP) coordinator. The “coordinator” part was there because my job description wasn’t actually to do counseling; it was to assess the problem and refer the client for help.

But of course both of those processes involved counseling. We just couldn’t call it that.

In 1986, shortly after I’d begun the job, I was separately visited by two employees with HIV/AIDS. Treatments such as the antiviral drugs used so successfully today were nearly a decade away, and a diagnosis of HIV meant almost certain death. These clients were understandably upset and frightened, but they each made it clear to me that they

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Consult

Daniel Becker

Once the tube is out it takes her a minute to turn blue and relax. Another minute to lose her pulse. I learned as a student to feel the difference between the pulse in my fingers and the pulse at the patient’s wrist. Or thought I learned. When you listen for a heart to stop you start to hear heart sounds that might not be there. Like waking up at night thinking you heard something then listening to the dark to be sure, not quite convinced either way. Weak sounds, S1 and S2, valves closing. Slow and slower, regular then irregular, then almost nothing…then who knows? The monitor is off in her room but on at the nursing station. One screen shows every heart

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Saving Grampa

Alia Moore

You were supposed to die of cardiac arrest as you circled toward home plate. Or of a brain aneurysm in the summer during one of your countless hikes through the mountains.

You weren’t supposed to die here. Not in a hospital bed, inhabiting this fragile new body, with an oxygen tube in your nose and tumors in your lungs.

Two days before you left us, I traveled home to visit you. I’d last seen you six months before, shortly after your eighty-eighth birthday. You were a lifelong athlete and adventurer, but you seemed just a little less spry than I remembered.

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Eleventh Hour

K.D. Hayes

Uncle Walt died this morning. Finally.

 I say “finally” because I believed this day would come four months ago, when he had emergency bypass surgery.

At the time, I didn’t believe Walt would live; he was an ailing, seventy-seven-year-old man with severe pulmonary disease. When his heart started to hurt one Friday, his doctors told him, “With bypass surgery, you might live. Without it, you’ll be dead before the weekend is over.”

Walt’s oldest daughter and my parents, who were with him, told me about the doctors’ recommendations.

As a retired paramedic, I’d seen this scenario before–often enough to have a strong opinion, and my own advance directives.

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