fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Losing My Vision

Sheila Solomon Klass

Sunday, September 26 of this past year began normally enough. I did what I do every day, first thing: I put on my glasses and tested my vision. I’m eighty-three years old, and although I’ve always been nearsighted and have lived with glaucoma for thirty years, I’ve developed a worse complaint: AMD, age-related macular degeneration, in my left eye. 

My ophthalmologist diagnosed the AMD after I told him that, when I was reading, the print seemed faded and straight lines looked bent. I learned that AMD eats away at the macula, the central part of the retina, gradually destroying your ability to read, to watch television, even to recognize familiar faces. Today my left eye sees shapes and colors but no details;

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Adam

Genevieve Yates

I tried to focus on the chart in front of me, but it may as well have been written in Russian. I’d been awake for thirty-two hours, and my brain, thick with fatigue, refused to cooperate. I knew I shouldn’t be working, but I was too proud, too stubborn, too something to admit that I wasn’t coping. 

On the first day of my neurosurgical rotation, the resident I was replacing had told me, “Ten-to-fourteen-hour days, twelve days on, two days off. Say goodbye to your life for the next three months!”

I was prepared for the long hours, endless paperwork and ward-round humiliations. I expected that it might be necessary to take a leave of absence from my personal life. What I didn’t expect was

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Life, Preciously Poured

Kate Benham

You pour a cup of pecans
Like a kid catching raindrops
In a bucket.
Careful not to spill,
Your fingers playing tremolo on a 
Violin-string cup measure.

Your bed-tucked
Mouth, warm, with
Tongue searching the lips
For forgotten first lines of bedtime stories
Like misplaced glasses, resting on your head.
I read to you, now,
In hospital beds.

Forehead wrinkles stacked 
In three creases–
Your crossword face,
Mouth-chewed pencil between your lips,
Scooping for synonyms 
As you now scoop sugar.

Patient tablespoons of vanilla
Heaped with the effort
Of standing up for fifteen minutes

Love spelled in spilled flour
By hairless eyelid blinks.

This mother’s day coffee cake
Streuseled with memories of able-bodied bike rides
Suspended in white hospital gauze.
It tastes like

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Falling in Love With My Doctor

Judith Lieberman

The other doctors I consulted called him brilliant. His past patients praised his compassion. He actually responded to e-mails. And, lastly, he was known as the best-looking doctor at the cancer center. What more could I ask?

On the other hand, what choice did I have? After twelve years, I was facing a recurrence of a relatively rare oral cancer, located inconveniently at the base of my tongue. The treatment options were not great. The radical surgery recommended by one prominent cancer center could have left me unable to swallow, talk or eat normally.

My incredible husband stayed up many nights researching surgery, radiation, chemotherapy and all the combinations. On the bright side, my teenagers cleaned their rooms without being asked! 

The last

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Sweet Lies

Marilyn Hillman

I can sense the question before it comes.

“How are you doing?” 

I want to answer, How do you think I’m doing, with my husband morphing into a ghost? I’m dying here. But thanks for asking.

Instead I clench my fists and deliver a cheerful response: “I’m good.” Which is, of course, a lie.

My husband is demented.

I cannot say these words out loud. Pushed to the wall, I’ll say that my husband has dementia, like it’s temporary–a virus curable by bed rest and chicken soup. Murray admits only to memory problems, while I split hairs over which verb I can stand to put next to his decline. We skitter around the truth like insects caught

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Death at a Distance

Your message hung on the phone line

like his striped shirt blowing
in the last wind of his life:
softly and with dignity.
His facial bones,
and body contours
he allowed to be chiseled
to an insubstantial sharpness
by the flow of chemicals and
the relentless labor of his disease:
both polished his body to dust.
Your life that has breathed that dust
for years will, someday,
carry it to the stars,
where it belongs.

About the poet:

Edwin Gardiner, a urologist, was in private practice for thirty years in San Diego; he did his surgical training at UCSF and NYU-Bellevue Medical Center. “I’ve written since my undergraduate days at

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Steep Sledding

Jonathan Han

“Don’t worry,” my doctor said.

I barely heard what he was saying; lying there in the hospital bed, I was caught up in contemplating the diagnostic procedure I was scheduled to have the next morning.

“With these anesthetics,” he continued, “you won’t feel or remember a thing after it’s over.”

“Okay,” I answered weakly, signing the consent form with unaccustomed legibility. But could I really forget the emotional trauma of these past twelve hours?

I’m a physician, and blessedly accustomed to standing on the other side of the health-and-illness divide. But after four days of crampy abdominal pain, my self-diagnosed “gastroenteritis” had horribly morphed into a “rule out carcinoma” directive. Now I faced another twelve hours of waiting–reviewing

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To My Left

Anne Herbert

I walk down the airplane aisle, scanning the rows. My eyes finally fall on 15F. My seat.

My nightmare.

This window seat means only one thing to me: someone to my left. A man, to be exact–middle-aged, reading the New York Times and snacking on a bag of peanuts. He doesn’t notice as I shove my purse under the seat and sit down. My only thoughts are of blending in–with the other passengers, with the chair, with the plane itself. Anything.

My objective on this five-hour flight is simple and clear. It’s the same one that I cling to almost every second of every day: to keep my left side hidden from the world.

Everyone has a good side–a more photogenic side, a certain way

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Chemo? No, Thanks

Elaine Whitman

“If I were you,” said the radiologist, as I sat on the gurney discreetly wiping goo from my right breast, “I’d make an appointment with a breast surgeon as soon as possible.” His somber tone of voice, the white blotch radiating ugly spider tendrils on his ultrasound screen…neither of these made me nervous. If anything, I felt mild interest: “How very odd. He must think I have breast cancer. Or something.”

Ten days later, after a lumpectomy and sentinel lymph node biopsy, my husband and I sat in the breast surgeon’s office. “I’m so sorry,” he said. “You have Stage IIb breast cancer. There’s a 1.1 cm tumor in your right breast, and the cancer has spread to three of your lymph nodes.” 

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