fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Search
Close this search box.

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Search
Close this search box.
  1. Home
  2. /
  3. caregiver stories
  4. /
  5. Page 2

Tag: caregiver stories

The Memory Unit


Ann Anderson Evans ~

I arrive in the memory unit at 1:30 in the afternoon. Jean, my mother’s sister, is fast asleep in her hospital bed in Room 1410. For the past ten years, it has fallen to me to be her frequent visitor and care monitor. I do this willingly because without her generosity and compassion, my life would have been far less meaningful and enjoyable. She never married, but my brothers

Read More »

My Love Affair With Jude


Larry Bauer ~

In August 2016, our daughter Rachel and her husband Alberto traveled up from Memphis with their two children, Noel and Jude, to visit my wife and myself in Dayton, Ohio.

One afternoon during their stay, I was sitting in my favorite reading chair beside our kitchen area. Glancing over my shoulder, I saw seven-year-old Noel playing. Beside her, lying tummy-down on the floor, was three-year-old Jude. He was in

Read More »

What I Did for Love


Amy McVay Abbott ~

My husband, who’s had type 2 diabetes for twenty years, had been struggling for a long while to lower his hemoglobin A1C–a number that measures how well he’s managing his blood sugar over time. When he and I finally investigated the issue, it turned out that someone close to him was thwarting his efforts.

This person is an addict. Her drug of choice is sugar–often candy no self-respecting

Read More »

Hunting

Scott Newport ~

“Seriously?” began Amy’s text, which popped up on my iPhone one blustery November morning.

“How do you know?” she went on. “Why don’t I feel him with me?”

I had no idea how to answer.

Read More »

The Caregiver’s Mantra

Patricia Williams ~

If one more person tells me to be sure to take care of myself, I’m going to bury my face in a pillow and scream.

“Go for a walk, take a vacation,” they advise. I know they’re trying to help, but really? Giving me one more thing to do? Oh well, they’re just doing the best they can.

I moved my folks across the country, from Florida to Washington

Read More »

Mom at Home

Arlen Gargagliano ~

Aisha is lurking in the kitchen just outside my home-office door. I hear her rattling dishes and speaking to herself in Twi, a language of her native Ghana. I know that she wants my attention, but I’ve told her that I need time to work. I try to focus on grading my college students’ papers, but I’m distracted.

Aisha is one of my mother’s aides. My mother requires care twenty-four/seven,

Read More »

Weary and Wishful

 
I was living just two blocks away from my parents, but I spent more time at their condo than I did at my apartment. I shopped for them and cooked, cleaned, and did laundry for them. I took them to appointments. I tried to help them lead lives of quality. Every night I went home feeling tired–after all, I was in my sixties–but also feeling glad that I could support them after all the

Read More »

Standing Up by Speaking Up

My parents immigrated to the U.S. from Korea when I was two, in 1972. We were lucky we left when we did, or my father, a pro-democracy professor at Korea University during Park Chung-Hee’s regime, might have been jailed. We were also lucky my mother was a pharmacist, as the U.S. was accepting pharmacists and nurses then. We moved to Seattle and made our home there.
Read More »

An Act of Love

For sixty-seven years, my dad was my best friend. We enjoyed walking and talking, taking long drives while licking ice cream cones, traveling, and just sitting in companionable silence.

We were best friends, but we always respected each other’s physical privacy. All of this changed when I became Dad’s caregiver.

Read More »

Paprika

The insistent chirp on the phone was a reminder from Fran. “Don’t forget to stop at the compounding pharmacy.” For $58 cash these specialists turned a pill into a cream. GERD made Fran intolerant of most oral medicines.

Tired from the long drive, I thought back on my years of marriage. Back pain was the first problem, I think. Then GERD, then migraines, dizziness, TMJ, panic attacks, fibromyalgia. They were all tough, serious problems.

Read More »

One Afternoon at Teatime

Marilyn Hammick

Arthur stops close to where we sit waiting
for the person you call the activities lady
to serve us drinks and biscuits.
He moves his wheelchair with slippered feet,
so we become another group.
You introduce me, This is my sister,
I nod to Arthur and watch his mouth form words
that seem reluctant to reach me, hang
in the air unsteady, diminished.

Read More »

Meditating with My Stepdaughter

It was a Friday afternoon in May, a week before my stepdaughter died. I was holding a solo vigil on the couch next to her bed, while she slept peacefully.

Her hair had started growing back, soft and thick and gray. I loved to rub my hand across her head.

Read More »
Scroll to Top