fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: caregiver poems

What They Don’t Tell You


Meg Lindsay ~

After 10 days in a hospital
you regain the ability
to walk albeit with a cane so I put the commode
out in the hall as you are laughing a bit more,
the gleam back, but the chemo starts
and the next morning again pain
in your ribs and sternum
and now it burns
in your chest and again you
can’t make it up the stairs.
A spasm and your body folds into itself,
into the sign of the crab.

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Where She Will Be

Francie Camper ~

City snow blankets my little mother in her hospital
bed in her bedroom, no wonder she is confused,
pointing to things in the air, on the ceiling that only
she can see. She might be hailing a cab. She raises
her head to tell me, Four members of the Isenberg
family came to visit and one was Mima Ettel,
who is already buried in the plot and she doesn’t
seem to know this. A land of the living and a land
of the dead, why should she have to remember
the difference? We paid a thousand dollars to move
her grandfather’s monument to make room for her.

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Remembering the Beginning


Jacqueline Dooley ~

I was unprepared
for the feel of your hair pulling free
with every brushstroke.
I wasn’t up to autumn
from the side of your hospital bed.
It seemed too much
for the universe to ask.
But, like you, I was choiceless
as I drove through November streets
the colors, drained and faded,
like your face when the chemo went in,
reduced to nothing more
than what I was when you were born.
I covered your exposed head.
I tried to stop your tears.

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What’s Left Over

Ruth Bavetta ~

One and a half tubes of smörgåskaviar, most
of a jar of blueberry jam, a full jar of lingonberries.
Four sets of blue plaid pajamas–God forbid
I should have gotten him red. Six pairs
of reading glasses, going back
in five-year increments. Hearing-aid
batteries stashed by the lamp.
Three packages of adult diapers.
Our marriage certificate.
The rest of the morphine.

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Top of the Hill

Erika Walker ~

“It’s as if you’re at the top of a hill,”
the doctor said. My father listened
from his hospital bed, a plastic tube

fed him breath he could no longer take
for himself. “Each time you get sick,”
the doctor said, “you roll a little farther

down the hill.” His young face shone
above his white coat. I remember rolling
down green hills when I was young,

playing in the park where my father
had played as a child. I laughed, loved
the bump and thrill, the sweet smell

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The Morning After You Died

Dianne Avey ~

So this is what it feels like
to be on the other side.
Hollowed out exhaustion,
rimmed with the chaotic clutter
of struggle and hope.
Like the beach after a tsunami,
all those once-important items,
now floating around uselessly.

I don’t know how to start this life
again.

This morning, they came
and took the bed away.

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Listening

Elizabeth Szewczyk

I couldn’t erase their words,
catch the breath atoms, stuff
them between lips,
couldn’t raise survival rates,
lottery odds dependent on cells suctioned
at the precise moment.

Your chest thumping, frantic,
valves siphoning warmth, drawing
cold through vessels, to your feet
crisping leaves beneath us while
you spoke her life.

Replaying slowly, baby girl, toothless
smile, creative toddler scissoring
Barbie hair (and styling hers to match).
Then, like a runner, sprinting
to that day the tumor revealed
itself, unveiled her future and yours.

You visioned her mane, now extinct,
loose, straight, gracing the crook
of her back, gracing the oval of her
face, strands like gold

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