fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Invisibly Different

Editor’s Note: This piece tied for first place in the Pulse writing contest, “On Being Different.”

“That seems like a dumb way to die.”

“Why would anyone choose to do that to themselves?”

I hear my medical-school classmates pose these questions as we learn about how an acetaminophen overdose can cause painful, fatal damage to the liver. How each metabolite can tear apart a liver cell. How it takes hours or even days for the full extent of the overdose to be felt.

I sit silently, uninterested in engaging in the conversation. My mind wanders back to the cold February night nearly fifteen years ago that brought me to my suburban emergency room.

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Shooter

Monday, August 28, 1:15 pm
Chapel Hill, NC

“Remain inside the building until further notice.”

The security alert on my phone screen is terse. Part of me is annoyed by its tone—long on commands, short on details. Sitting safely in my car after visiting a hospice patient, twenty miles from UNC’s hospital and university in Chapel Hill, I ignore the text, chalking it up to an overreaction by the security department.

The next alert, twenty minutes later, gets my attention. There’s an “armed and dangerous” intruder on campus.

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Truth in Translation

Editor’s Note: This piece tied for first place in the Pulse writing contest, “On Being Different.”

I learned from my grandfather how to lie to doctors the same way that baby birds learn chirping: by mimicry.

“All healed,” I would translate for my grandfather at appointments. “I used to smoke, but not anymore.” “The pain is very faint.”

A good apprentice, I knew that he was lying, and I translated it anyway. I was eight years old, and a fast learner.

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Kids Always Know

This is a story about failures. First, it’s about my inability as a pediatric hospice physician to do the one most important job in this tender space. Second, it’s about well-meaning, loving parents’ inability to do their part in that job.

Jacob was a smart, funny, elementary-age kid, great with Legos.

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Lessons From the Heart

This can’t be happening to me, I thought. Yet here I was, on a gurney being wheeled into a cath lab for an angioplasty and possible stent.

This can’t be happening, I thought again.

But it was.

A little background: I have always thought of myself as healthy.

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My Mother’s Keeper

It is a mitzvah to take care of your parents: “Honor thy father and thy mother.” And caring for people comes naturally to me. I’m a physician; this is what I do.

But when my father looked to me to cure my eighty-five-year-old mother’s dementia, saying, “You’re the doctor! Help her!” I knew he was asking too much.

And yet. How could I stand idly by while my mother’s mental acuity slowly drained away?

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The Black Dog

It was a particularly sunny morning, and golden light streamed through the clinic windows. Seated in my preceptor’s office, I scanned her list of patients for the day. As a first-year medical student, I was to do preliminary interviews with some, and I hoped to find a few cases that would offer a chance to test my diagnostic reasoning.

The list held a lot of the usual–medication follow-ups, annual physicals, well-child checks—plus Ernest, a seventy-eight-year-old man who’d come into the emergency room for a urinary-catheter issue. This seemed promising, so I volunteered to see him.

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My Castle

Moving to an independent-living facility requires finding a balance between controlling the things that you can, and accepting help, or changes, with the things that you can’t. It also means striking a balance between being part of a more regimented community and being part of the outside world.

I’m nearly seventy, which is young for this move. But my hearing and balance are not what they were. I’ve had no family for twenty years, having outlived parents, husband and brother. Friends who have helped me in the past are aging into their own disabilities. My apartment of twenty years needed renovations that needed me gone. The timing felt right.

But my transition comes with extra challenges, because I’m congenitally and totally blind.

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Letter to the Insurance Company Psychiatrist

Dear Dr. Anonymous:

Are you a Phil, Michelle or Darrell? Two years ago, you booted my seventeen-year-old son out of treatment, signing your denial letter “MD Psychiatrist.”

I understand that you were hired to qualify, or disqualify, patients based on a cost-benefit analysis. Your letter suggested that my son’s condition could be “managed at a lower level of care.”

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