fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Latest Voices

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Latest Voices

A Call In The Night

I married him in-between tours of Vietnam as a Navy junior officer, and even though we divorced after eight years, we stayed in touch and saw each other over the years.

When he emailed two years ago to say he’d been diagnosed with esophogeal cancer, I was concerned. But after radiation and an operation he wrote that his first two scans were good, and the doctors were hopeful. He was always a strong man and had been healthy, so I relaxed my fear somewhat.

When I wrote him a few months later, his reply was strange. He just said, “A

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It Changed My Life Forever

 
Today is the first “back to work” day of the new year. Twenty-six years ago today, I got my HIV positive diagnosis. I’d had my blood tested prior to a vacation in Palm Springs, and my first appointment of the year was with my physician. He didn’t hem or haw or mince words–told me straight out. I was stunned but stoic. In my heart, I had expected it. I had been a sexually active gay man in New York in the 1970s and 80s; more than a dozen close friends were dead from AIDS.
 

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Haunting Diagnosis

The day began like every other summer day. My eight-year-old son and six-year-old daughter ate their cereal, watched Sesame Street, and played—him with his Star Wars figures and her with her Barbies. After lunch, they gathered a few favorite books and toys to entertain them while they waited in the pediatrician’s office for their annual physicals.

Normalcy ended when the physician announced: “Your daughter has a severe curvature of the spine. She needs to see a doctor who specializes in scoliosis.”

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The Fighter

This was the third time he coded. Dean had been in the ICU for over a week without any visitors, telephone calls, flowers or balloons. He came in after an out-of-hospital cardiac arrest which he survived and subsequently had another arrest halfway through his stay here. He sure was a fighter.

With special help from the ICU team, we found a contact number for his mother after doing some research on the internet. I was tasked to call her and inform her he was in the hospital.

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Searching for My Superpower

My name is Tamara, and I have a blood cancer, Polycythemia Vera, which means in my bone marrow, the essence of my being, I have a mutation. Like the X-Men, only I have yet to discover my superpower.

You see it is freaking rush hour up in here. Too many red blood cells and platelets and not enough neurotransmitters or oxygen, and what this means is I feel like the life and the person I want to be have been hijacked.

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Hope in a Hopeless Place

 
In 2008 my father was committed to a long-term care facility, and our family visited him daily. We testified to the nursing home staff of the funny, smart, kind and generous man he once was.
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Finding Answers

 
When he was 24 years old, my first husband had a stroke. A blood clot blocked a vital artery deep in his brain. One side of his body fell flaccid. Speech and language fled. To all of my urgent questions, the neurologists at Massachusetts General Hospital could only reply, “We don’t know.” They didn’t know why it happened. There was no way to dissolve the clot or reverse the damage. They simply tried to keep him alive and waited.

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Occupational Empathy

 
On my first day shadowing an occupational therapist, I learned much more than I had anticipated.
 
We saw five patients that morning—with each one, the OT went through a series of exercises to test their strength and mobility. The first four visits were interesting, though uneventful, as the patients completed their exercises with varying degrees of success.
 
The last patient was a man with a history of alcoholism. He had a tube in his throat, which prevented him from speaking. A resident outside the room informed us that no one had been able to get him to

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A Beacon of Hope

 
I never realized the importance of surrounding myself with people in need of hope until I experienced a difficult time in my life, a time when I needed to lean on others to find hope and solace.

During the fall semester of my sophomore year in college, I suffered the loss of my grandma to lung cancer. I became wracked with guilt, anxiety and depression following the death of this essential member of my family. When I was informed of my grandma’s terminal illness, I had joined a support group; in this group, I cried and yelled until I

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