fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Latest Voices

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Latest Voices

Tears of Fear

After a four-day bout of intense, immobilizing, lumbar back pain, associated with a fever of 103.4, my wife and I decided that going to the ER was indicated. Within a very few hours, I was in the ICU with a presumptive diagnosis of Staph septicemia (infection) and pneumonia. Faced with my falling oxygen saturation, the intensivist recommended intubation and thus, for the next five days, I was in an induced coma while he and the infectious disease physician battled to save my life.
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What If the “N of One” Is Me?

I am a 54-year old academic, family doctor. Last May, after the US Preventive Services Task Force issued a draft recommendation that physicians talk with patients about PSA (prostate-specific antigen) testing at age 55, I was updating my clerkship presentation about preventive screening. At the time, I was experiencing some palpitations (sensations of an abnormal heart beat), so I decided to check my TSH (thyroid stimulating hormone) and CBC (complete blood count).  

Not having checked my PSA since age 48 (it was 0.9 then), I decided, on a whim, to add a PSA to my blood tests. It came

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Unexpected Repercussions

 
As a female, I do not have to deal directly with prostate issues, but I did have to support my father through his own prostate challenge. In February of 1986, Dad’s surgeon said the words we all hoped to never hear: “You need prostate surgery before things deteriorate.”

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Firing My Doctor

 
I didn’t decide to “fire” my doctor on the spot.

During my last appointment with her, I’d filled Dr. Green in on the details of my mastectomy. I happily reported that the surgeon had declared me “cured”–the tumor’s margins were clear and my nodes were negative. Because I had large breasts and wanted to avoid wearing a heavy prosthesis, I’d had a reduction on my healthy breast at the same time. A routine biopsy of that tissue had showed dysplasia–abnormal cells. As a nurse, I’d researched this finding and found scant evidence that it would develop into cancer. My

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Losing Touch

I worry that in the future, doctors won’t touch patients. When I put my hand on the foot of a dying patient–and feel that it is still warm and offer measured encouragement–I am doing the work of this profession.

Telemedicine, on the other hand, is part of another world; I don’t wish it to go away, but that it coexist with the tactile, earthy, demanding, inconvenient reality of patients’ bodies.  

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Lessons from the Judge

 
My co-worker in the intensive care unit said, “Hey, that looks like Burl Ives,” as we came out of the change-of-shift report.
 
The charge nurse replied, “No, that’s Mr. Jones, a federal judge. Everybody’s scared of him.”
 
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Unconquer This Territory

 
When I was six, good Uncle Hyman’s shiny nose enticed me for reasons I now find obscure and incomprehensible. I scrubbed and scrubbed at my own nose to make it as polished as his. It stung a little. But I was pleased.

 
Until my nose scabbed over in one big sheet the next day. “What have you done?” my mom demanded, and laughed until she couldn’t breathe when I told her.

“All I wanted was a shiny nose,” I cried. She had to sit down because her giggles made her wheeze.

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A Mother’s Worry

How does a mother not worry when her son is a heroin addict? Yet, counterintuitively, it was letting go of my worry that allowed me to survive. 

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Ten Days and Counting

We were waiting anxiously for a surgery to correct a stricture in our newborn son Ethan’s aorta, just four days following another procedure, to repair defects in his throat. After Ethan was prepped for surgery, the cardiovascular surgeon called us aside. 

“Our first surgery,” he said, “took much longer than we anticipated. We are all a little tired. If you feel strongly that we should go ahead with the operation, we will do it as scheduled. But we would rather wait until Monday.”   

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