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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: Parkinson’s disease

Love, Marriage and Parkinson’s

In 2015, while walking with my wife, Jody, in our neighborhood, I suddenly found myself bent over and taking tiny, rapid, repetitive steps. I knew I was moving too fast, but could not stop myself. Jody thought I was kidding—until the moment I fell down on a neighbor’s lawn.

A passing driver slowed down to ask if I was okay. I was all right, but thought the experience odd.

I’d never heard the word “festination”

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The Joys of Parkinson’s Disease

Two and a half years ago, a movement-disorder specialist confirmed my family physician’s judgment that my problems with balance and walking could be early signs of Parkinson’s disease. That’s exactly what they were. I joined one million other Americans living with this illness.

My symptoms, although mild and so far manageable, are nonetheless evident.

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Mom

Diane Guernsey

By this time next week, my mother may be dead.

In a sense, she’s been dying for a long time. This leg of her journey is the last in a decades-long trek with Parkinson’s disease.

She lies there, her head small and delicate on the pillow. Her hair is a wispy white thatch; her throat muscles are rigid, as if she’s just lifted a huge barbell. But her breaths come slowly,

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