After fifteen years as a physical therapist in the long-term care industry, I’d vowed never again to get overly attached to a resident. Although I accepted my patients’ inevitable physical and cognitive declines, the deaths of those I had cherished took too much of an emotional toll: It felt like losing a grandparent, repeatedly.
Then William entered our facility.
In 2015, while walking with my wife, Jody, in our neighborhood, I suddenly found myself bent over and taking tiny, rapid, repetitive steps. I knew I was moving too fast, but could not stop myself. Jody thought I was kidding—until the moment I fell down on a neighbor’s lawn.
A passing driver slowed down to ask if I was okay. I was all right, but thought the experience odd.
I’d never heard the word “festination”
Two and a half years ago, a movement-disorder specialist confirmed my family physician’s judgment that my problems with balance and walking could be early signs of Parkinson’s disease. That’s exactly what they were. I joined one million other Americans living with this illness.
My symptoms, although mild and so far manageable, are nonetheless evident.
Diane Guernsey
By this time next week, my mother may be dead.
In a sense, she’s been dying for a long time. This leg of her journey is the last in a decades-long trek with Parkinson’s disease.
She lies there, her head small and delicate on the pillow. Her hair is a wispy white thatch; her throat muscles are rigid, as if she’s just lifted a huge barbell. But her breaths come slowly,
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