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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Tag: neuroscience

Prison Break

Jack Coulehan

I eavesdrop on the cells in your brain,
which are trying to bust out of a prison
surrounded by broken connections.

They make an almost inaudible hum
beneath mechanical whooshes and pings
surrounding your hospital bed. I listen

while sitting with your hand in mine,
not comforted by the confusion
of intensive care–I know your brain

is scheming, despite these machines
and my heartache, to escape. Its intention
is clear–get out while there is still time.

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Once

David Goldblatt

Movement disorders can be horrifying. Afflicted persons are solidified or contorted. They may flail so violently that a fork endangers their lives. As a beginning neurologist, I assumed that all such patients curse their fate. Once I got to know Brian, though, I realized that I could be wrong. 

Brian and one of his brothers had inherited Wilson’s disease, a rare, genetic movement disorder that had spared their eight siblings.

People who have Wilson’s disease can’t handle dietary copper properly. It accumulates in–and poisons–the kidneys, liver and brain. Avoiding foods rich in copper does not halt the progression of the disease, but it helps. If patients are also treated early and consistently with a drug such as penicillamine, which binds copper and aids

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