fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Search
Close this search box.

fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

Search
Close this search box.
  1. Home
  2. /
  3. ill parent
  4. /
  5. Page 3

Tag: ill parent

When You Don’t Know What to Hope For

 
My mother lies quietly in the hospital bed that has replaced her regular bed, now that she can no longer get up on her own. Every day she stares at the TV, appearing to watch it with interest. When I come into her room, she smiles and tries to say hello–in a voice that is barely a whisper. Her eyes sparkle a little. In my own discomfort, I begin asking simple questions, hoping to elicit a simple answer. She stares at me, then she stares above me, looking intently at the ceiling.
Read More »

What If I Die Now?

 
The mood was grim in our house on this night, as it always was when my mother was at her sickest. My mother was suffering at the hands of what I know now to be systemic rheumatoid arthritis: the pain was clearly eating up her soul and body alike.
I looked at her as I helped with her evening pills, hoping they would bring some magic to lift the cloud hanging above us. I looked at her hands, so deformed by this monster of a disease, and I feared I might cry in front of her. I knew she wouldn’t like this at all but I couldn’t shake the voice of her saying that she thought she would die tonight. Or did she say

Read More »

When the Phone Rings at Night

“I’m at the hospital,” my mother said.”Talk to the neurosurgeon.”
The ringing phone had roused me out of a deep sleep. Already, my heart was racing, and I was wide awake as the doctor began to speak.
Read More »

Halloween Heartache

It was one hour past midnight, late enough that even the college students who lived in the apartment building across the street had changed their Halloween costumes for pajamas, turned off their lights and fallen into a sugar-induced sleep. I lay in bed, remembering the Halloweens of my youth when Dad and I had gone trick-or-treating together. He had protected me from the goblins, witches and ghosts that had roamed the streets of our neighborhood, and I had shared with him some of the candy I accumulated.
Read More »

The Baby Monitor

 
My parents slept together in the room next to mine for the last three years. They passed away this spring within three weeks of each other.
 
I invaded their privacy at night because I was so afraid I’d miss them gasping for breath or crying out in pain. I bought a baby monitor. 
 
Read More »

Nunc dimittis

 
My father, a pathologist, was diagnosed with late-stage gastric cancer soon after I was married. He knew exactly what the diagnosis meant, but he enjoyed life for another two years. Then he stopped responding to treatment and began to decline over the winter. He and my mother were happy to learn I was pregnant with their first grandchild, due in June.
 
Read More »

“Groanings Too Deep for Words”

She hadn’t been able to talk for several days. I don’t know what robbed my mom of her speech. Was morphine the culprit, with its ability to dull both mind and body? Did sheer exhaustion from laboring over each breath leave her too tired to talk? Or maybe her pain was so severe that she could not give voice to its intensity. But what she couldn’t speak with words, she spoke with groanings.

Read More »

An Act of Love

For sixty-seven years, my dad was my best friend. We enjoyed walking and talking, taking long drives while licking ice cream cones, traveling, and just sitting in companionable silence.

We were best friends, but we always respected each other’s physical privacy. All of this changed when I became Dad’s caregiver.

Read More »

Death Watch

Even dying, Dad fills the hospital bed. He’s a big man. His slumped body bears two bed sores, one on each leg. A matching set.
Once, he ruled me. A slap of one hand hand here. A smack of his other hand there. “I’ll give you something to cry about.”
Read More »

Body Language

Alan Harris

after my father had his stroke
we never spoke again
but that didn’t stop us
from reading each other’s faces

recognizing the punctuated pauses
periods and question marks
etched in eyes, sighs and sad smiles

It took both hands to hold one of his
that first day in the hospital
as my eyes whispered how much I cared
and his smile replied, Thank you

Read More »

A 3:00 a.m. Phone Call

 
When the phone rang at 3:00 a.m., as I reached out my hand to answer it I knew the call was bringing bad news. On the other end of the line, I heard my dad’s croaky, Parkinsonian voice stammer,”Rozzie, I’m so cold. Come here and help me; I can’t reach the blanket to cover myself.” It seemed like forever before he was able to squeeze out the additional information that he’d called the front desk at the assisted-care facility where he lived, but Jose, the night attendant, had said he was alone and couldn’t leave the desk, even for a few minutes. 
I told my dad I’d take care of the problem, dialed the front desk number, and listened to Jose explain that the

Read More »

Lipstick

 
My mother’s scent, Replique, always entered my bedroom an instant before she did. The message my nose carried to my brain, then on to my heart, was “She’s going out tonight.” 
 
She would first sit on the edge of my mattress. The comfort of her nearness would always be overshadowed by the sadness that I knew would overtake me once she left me alone. But we both pretended it didn’t matter. She’d say all the requisite things like “Sleep tight” and “See you in the morning” and “I love you.” And then she would kiss my hand and be gone–leaving behind a waxy, deep-red imprint of her lips, pressed onto my skin. 
Read More »
Scroll to Top