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Tag: patient stories

Elephants: Another Day with CFS


Linda Koebner ~

Two elephants won’t leave me alone.

Every morning, as I struggle into consciousness, my brain makes plans. I will get up out of bed, go pee, find my way to the kitchen, put water on to boil, fit the paper into the coffee filter, grind beans, slow-pour over the grinds….

In my mind’s eye, I visualize that the coffee is hot, that the news I read is upsetting

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I’m Still Here


Inez Martinez as told to Erin McCoy ~

Editor’s Note: Having just finished her first year of medical school, Erin McCoy became a summer intern for Pulse and embarked on a project to collect patient stories through interviews. One day, a family-medicine resident at a Bronx family health center told her about an interesting lady in Exam Room 8. “I go there,” Erin says, “introduce myself and explain my mission. She agrees to speak

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A Poetic Stroke


Thomas E. Schindler ~

Editor’s note: This Sunday will mark the last day that we accept poetry submissions this year. We offer today’s story in honor of the poets who are sending us their creative works for consideration.

For the past few years, since becoming a grandfather, I have indulged in an afternoon nap. Last year, while arising after a nap, I fell on my face–hard. Cautiously, I got up, and then carefully lay

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Sick of Being Sick

Ryan Nesbit ~

From second through fifth grade, I mastered the art of being sick. I got out of school, soccer practice and piano lessons so that I could be the child I wanted to be–not sick, but loved, cared for.

Here was my recipe:

1. Wake up.
2. Feel anxious about the day to come (this was natural).
3. Let the anxiety morph into a sickly pallor.

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A Survival Guide to Chemo and Radiation


Lynn Lazos ~

Chemotherapy and radiation are not pleasant experiences, but knowing how to handle them can make your life a whole lot easier.

I had my first mammogram at age thirty-five, and for the next thirty-five years I had mammograms regularly. On my way, I’d pass the entrance to the Thomas Johns Cancer Hospital, outside of Richmond, VA, never thinking that I’d one day cross that threshold myself.

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Christmas Story

Ned Towle ~

Christmas Day 2012

This Christmas is different. My wife and I are spending the day alone, as our two children and four grandchildren came over yesterday for the big celebration.

It’s 10:00 in the morning. I have just completed a nine-mile run and am sitting on the living-room floor. My wife, Linda, is on the sofa with her computer.

I feel unusually tired; rather than take a shower,

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First Combat, Then Conversation

 
2010: I’m a 25-year-old premedical student, an herbalist and a volunteer at a free clinic. I’m experiencing unaccountable fatigue, achiness, brain fog and dizziness. After a series of medical evaluations, I receive a dreaded diagnosis–Lyme disease, the same infection that crippled my mother, that I now feel twisting my body and contorting my mind. I am infected with terror.
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No Laughing Matter

 
“You need a fifth surgery,” the maxillofacial surgeon tells me. “Heterotopic bone is again growing over your prosthetic device.”

For eight years I have endured intense pain in my left jaw. While having four surgeries, I have also undergone Botox treatment, acupuncture and physical therapy; taken a variety of medications prescribed by pain doctors, neurologists and my primary care physician; and used specially made creams, ice and heat on the affected area. Nothing has worked.

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A Call In The Night

 
I married him in-between tours of Vietnam as a Navy junior officer, and even though we divorced after eight years, we stayed in touch and saw each other over the years.
When he emailed two years ago to say he’d been diagnosed with esophogeal cancer, I was concerned. But after radiation and an operation he wrote that his first two scans were good, and the doctors were hopeful. He was always a strong

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It Changed My Life Forever

 
Today is the first “back to work” day of the new year. Twenty-six years ago today, I got my HIV positive diagnosis. I’d had my blood tested prior to a vacation in Palm Springs, and my first appointment of the year was with my physician. He didn’t hem or haw or mince words–told me straight out. I was stunned but stoic. In my heart, I had expected it. I had been a sexually

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Monkey Magic

 
Although I was an unpopular adolescent–never invited to parties, never asked on a date–I still had dreams. I wanted to become a teacher, a wife, a mother. Then a medical issue threatened my mother dream and, possibly, my wife one as well.

Shortly after I graduated from high school and a few days after I turned eighteen on August 8, 1965, I entered the hospital for surgery. A chronic pain on the left side of my abdomen had

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Nothing Left Unexposed

“Use the room over there,” she said, pointing towards the closed door to my right and handing me a clear, plastic cup with blue-twist top. “When you’re done, open the slot behind you, place the sample and close the slot door.”

It’s opening day at my cancer hospital. First peek into my innards is a urine sample, checking for protein. Too much excreted protein may signal kidney disease, a death knell to

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