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My Family’s Chronic Illness

Mother’s Day, 2020. My daughter Skyler was sitting on the tall stool at the kitchen counter, her long hair in a messy bun that she’d pulled apart as she was thinking. For months, she’d been searching for financial support to attend university in the fall. It was the deadline for a scholarship offered by the drug company Vertex to family members of patients who have cystic fibrosis (CF).

Patients like me.

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