I was in my third year of medical school, partway through my psychiatry rotation.
“You’re ready for your first mental-capacity consult,” my attending said. I felt excited at being deemed ready to administer this evaluation, which is used to determine whether a patient has the ability to make decisions about their own care.
“The medicine team is confused about this one,” my attending continued. “He’s clinically improving from his COVID infection, but he wants to withdraw from care and has refused physical therapy. The resident thought that he would be her miracle patient; she doesn’t want to give up. She thinks he must be depressed. Keep in mind that he’s in his nineties and is still on high-flow oxygen.”
In my head, I imagined a frail, elderly man at peace with his decision and his life. The thought was soothing. As we approached the COVID floor, I began gearing up. I put on the gown, the gloves, an extra mask over my N95 and finally my trusty face shield. It felt as though I were donning battle armor, preparing for what might be a tough conversation.
It’s nothing I can’t handle, I reassured myself.
I entered the room a confident young knight in shining armor, ready for a valiant fight. But then I saw him.
There he was, sitting in bed, a youngish-looking, rather well-built man. A man who looked no older than sixty-five. He was eerily familiar, perhaps a bit like my father, a few years down the line. Despite the dried blood crusted under his nose from the high-flow oxygen tube, the man looked remarkably comfortable.
I felt a little shaken, but stayed on task. My attending was watching; I couldn’t choke.
“Hello, Mr. Michaelson,” I said. “My name is Kirstin Peters, I’m a third-year medical student with the psychiatry team.” We exchanged pleasantries, and I learned that Mr. Michaelson grew up on a ranch and had served in the military.
Then I started going down my capacity checklist. He knew that he’d had COVID and had been in the hospital for weeks. Before I could finish describing how much he was improving, and how they’d been weaning him off of his oxygen, he stopped me with a single word:
There was a long pause.
“I’ve been in the hospital for months, and I’ve been in so much pain,” he said forthrightly. “I’m tired.”
“We can work on getting your pain under better control—”
“No,” he said sternly. “I do not want any more pain medicine. I know my body, and it is telling me that I am done. I’m ready to die.”
Here was a man who looked nearly half his age, sitting up comfortably and chatting with me, showing no signs of effort in his breathing and no signs of depression, telling me that he was done. I just couldn’t believe it—and I didn’t know how to respond.
“Do you have any family nearby?” I asked.
“My wife is back home at the ranch.”
Aha, I thought. This could remind him of a reason to hang on.
“Have you spoken to her recently?” I asked.
“I can set up a phone call or a video call, whichever you prefer.”
“No, she knows I’m here, and she knows me. Besides, she doesn’t speak much English. There’s no need to call.”
“Do you have any children?” I asked, a bit desperately.
“No, I never had any children,” he said, looking straight into my eyes. I think he could see, even through all of my masks and shields, that I felt confused and at a loss.
Fearing that my attending would cut me off any second, I quickly jumped into the mini-mental status exam, thinking, It must be delirium. Mr. Michaelson must not grasp the situation.
To my dismay, he answered every question perfectly.
Losing steam, I doggedly began a series of screening questions for depression.
He must be depressed. How else can he not see that he’s going to recover?
Mr. Michaelson let out a loud, exasperated sigh. He stared into my eyes again, and I felt even more naked and unprotected than before.
“We do it for dogs, we do it for horses!” he yelled, his voice cracking. “I did it for dogs, I did it for horses. Why can’t you do it for me? Why can’t y’all just put me down?”
Stunned, I felt my armor crack and shatter to bits. I shot my attending the “Please help” glance.
He jumped in.
“I understand how you feel, Mr. Michaelson,” he said quietly. “But we are a life-preserving society.…”
He kept on talking, but Mr. Michaelson wasn’t buying it.
“Why can’t you just kill me? It doesn’t make any sense. Just let me die. Let me die on my terms,” he kept saying. “Why can’t you just shoot me?”
I felt floored and exhausted. After what felt like hours, my attending and I finally left, my attending’s only recommendation being to start Mr. Michaelson on bupropion for adjustment disorder with depressed mood.
The next day Mr. Michaelson looked even better clinically, but we had the same conversation, to my intense frustration: Why isn’t he listening? How does he not see that he’s getting better?
Day after day for almost a week, he improved clinically—until suddenly, he didn’t.
On the fifth day, I came in ready for the same exchange, but he looked worse–much worse. His oxygen requirement had gone up, right back to what it was the first time we met.
I looked at him, feeling stunned yet again.
He smiled, lying in his bed.
“I told you I wasn’t getting better.”
Before I could respond, he scoffed, “Bet you docs think I did this on purpose to spite y’all!”
I paused. Of course, I knew he didn’t do any of this on purpose. But I couldn’t help but feel frustrated.
He was getting better, he wasn’t dying, a voice in my head kept insisting. But now he was.
I was quiet.
My attending swooped in and spoke to him in the kind and understanding way he always did with patients, but I stayed silent, mulling over Mr. Michaelson’s words.
I had never before felt such a strong reaction to a patient’s comments.
Mr. Michaelson continued getting worse, no matter what interventions we caregivers came up with. Eventually he went on to comfort care, as he’d wanted from the very start.
If I had beaten COVID and was healing, strong, and had a wife waiting at home, I sure as heck would want to live, I kept thinking.
But that’s the thing: It was never about me. It was about Mr. Michaelson, telling us from day one what he wanted.
We were the ones who needed to listen.
5 thoughts on “Why Isn’t He Listening?”
90!and competent and knows what he wants. We doctors are so arrogant and death denying. Nice story. Learn this one early…and respect peoples wishes- rather than bupropion or another drug. There was a whole generation of doctors who didn’t get this- glad you are!!!
I had a classmate who died last week. In her last few weeks we exchanged texts as she could barely talk. She told me she wanted to die. I asked her how she felt about it.
” I am so ready but why isn’t it coming soon enough?”
“Maybe the extra time is for your family to come in terms with it. This is your chance to tell them and for them to talk to you. Use this time wisely”
She did and they were more at peace when she died.
I felt I did right by her.
This weekend I visit her family and pay my respects at her grave site in Virginia.
Sometimes enough is enough. His story illustrates that. Thanks for sharing.
Would being fully present in listening, then inviting “Tell me more…” to his refusals, have elicited more of what his deeper thinking was in his resignation to dying? Our patients can be our teachers… and there is always more to learn. Thank you for sharing this impactful experience. Keep writing! (My book about being with the dying may be of interest to you, “Vigil: The Poetry of Presence.”)
Thank you for remembering your patients! I enjoyed your story very much! You are a great doctor!