Pulse newmasthead 10th anniv 2252x376px

Subscribe/Energize


new subscription

Join the 11,000+ who receive Pulse weekly



energize subscription 
Energize your subscription
with a contribution and
keep
Pulse vibrant



Victor Fornari

One autumn morning, a woman called the division of child and adolescent psychiatry at the Cohen Children's Medical Center on Long Island, asking to speak with me.

In more than ten years as the department's director, I've received countless phone calls, but this one instantly got my attention.

"She says that she was your patient in 1984," said my assistant, Eileen. "Her name is Anne--"

"Jones," I said instantly.

"You don't remember her, do you?" Eileen exclaimed.

"I certainly do," I said. "The hospital opened this unit on Valentine's Day, 1984, and she was the first child admitted. How could I ever forget?"

When the unit opened its doors, I was a second-year child-psychiatry fellow, having already completed a three-year residency in general psychiatry. For months, I'd helped with the preparations--interviewing and hiring the staff, creating the policies and procedures.

The unit was state-of-the-art. Located in a brand-new building, it had fifteen beds in private or semiprivate rooms, a large common room, an adjoining dining room, a nursing station and chart and medication rooms. There were two classrooms where the children could attend school three hours per day, and a quiet room where they could go to calm down when upset. The rooms were bright and airy; the large windows and child-friendly artwork on the walls created a pleasant, cheerful atmosphere. Needless to say, on opening day we staff members were bursting with anticipation.

I interviewed the first two patients to be admitted. One was Anne, age twelve, a tall, slender brunette girl with Tourette's syndrome, a condition that includes uncontrollable vocalizations and physical motions.

She was an adorable child--sweet, bright and outgoing. At times, compelled by her condition, Anne would abruptly swing her arms, sometimes injuring herself or those around her. Medications and behavioral therapy had failed to control this, and Anne's psychiatrist, parents and schoolteachers had all agreed that she should come to the unit.

Watching as Anne's parents signed the necessary paperwork, I sensed tension between them, and when they'd gone, I was struck by Anne's obvious relief. We had anticipated that she might feel frightened to be admitted, but clearly this wasn't so.

She remained on the unit for three months. During that time, her parents came for weekly family meetings, which simmered with anger and resentment. Anne always seemed eager for her parents to go and clearly felt more relaxed once they'd left.

I spoke with Anne often and asked whether she'd ever suffered any physical or emotional trauma or been exposed to inappropriate sexual behavior, but she denied this.

She enthusiastically threw herself into life on the unit. She did well academically, participated in arts activities and took on a leadership role, explaining things to the newer and younger children. And she worked hard in her individual therapy and on her behavioral plan to try and minimize her motor tics.

In her months with us, she became quite attached to the nursing staff, and they in turn "adopted" her. All the while, my colleagues and I kept wondering why a child so sweet and affectionate didn't wish to return home.

"Why doesn't she enjoy her parents' visits?" we'd ask one another. Most children eagerly looked forward to seeing their parents; Anne seemed happier visiting with the other children's families.

When I raised the possibility that Anne might go to a therapeutic boarding school, she seemed excited, and her parents were intrigued. I wrote to her school district recommending this option, which was approved. Within weeks, Anne was accepted into a residential school out-of-state.

On the morning of her discharge, we held a community meeting to say goodbye. The nurses brushed away tears as we wished Anne well. She'd not only been our first patient; she'd also been our teacher, helping us to learn how best to navigate the routines in our new facility.

Her parents arrived and signed the discharge papers, and Anne left for boarding school. We never heard from them again.

Over the following three decades, I'd often wondered about Anne and the unit's other early patients. I had sometimes thought of following up on the first 200 children admitted, but had never pursued the idea.

Now here was Anne reaching out to contact me.

When I called her back, she picked up the phone right away.

"Hello, Dr. Fornari!" She sounded absolutely thrilled.

"How are you?" I asked.

"I'm doing well," she answered. "I'm wondering if I can come to see you--I have some excellent news to share."

"Of course," I said. We planned to meet a few days later.

Over the intervening time, I thought a lot about Anne's phone call. I found it remarkable and touching that she'd made the effort to track me down, thirty-two years later.

At the appointed hour, she appeared in my office and told me her news.

"I'm married, and we have a fourteen-year-old son," she said, smiling. After telling me more about her husband and showing me photos of her son--a handsome, cheerful, healthy-looking boy--she paused for a moment.

"I want you to know that my time here, and my treatments with you, saved my life," she said. "I think about you every day--and I wanted to say thank you."

She paused, then asked, "Whose idea was it that I go to residential school?"

"It was my recommendation," I replied.

"You saved my life," she said again.

"How?"

"My uncle was sexually abusing me," she said. "It started when I was six. Nobody knew--I was afraid to tell anyone. He threatened to kill my mother if I did."

Overwhelmed with horror, sadness and disbelief, I thought back on those family meetings. What could I have done to get at the truth sooner? I wondered.

"Bringing me into the unit, and then having me go to boarding school, took me away from that," Anne finished. She started to cry.

Too moved for words, I felt tears welling up in my eyes. You care for people, and often, afterwards, you don't know what becomes of them. Now Anne had come back to let me know.

She told me how things had gone with her family. Her older brother had died of a drug overdose in high school. Her parents had divorced, and her father had remarried. Although Anne believed that they must have known about the abuse, they steadfastly maintained that they hadn't.

"Thank you again," she said, preparing to leave. "Being able to thank you in person has been a dream for me."

After she left, I sat and reflected on the impact of my work--on my patients, and on myself. By sharing their stories, individuals and families invite me into some of the most sensitive, intimate parts of their lives. I always hope that they find my interventions helpful, but it's often difficult to know for sure.

Now, for one patient at least, I had an answer.

As I began to write this reflection, it occurred to me that Anne's visit had been a dream come true--for me as much as for her.


About the author:

Victor Fornari is director of the division of child and adolescent psychiatry at Zucker Hillside Hospital and a professor in the departments of psychiatry and pediatrics at Hofstra Northwell School of Medicine, in Hempstead, NY. He has published extensively on eating disorders and other aspects of child and adolescent psychiatry, and his work has received numerous honors at the local, state and national level, including, most recently, the 2016 Wilfred Hulse Award for outstanding contributions to the field of child and adolescent psychiatry. "I have long been interested in writing as a form of expression and as a teaching method. When Anne's phone call came in, I felt the need to write this reflection both as a means to process what had just happened and in order to teach others."

Story editor:

Diane Guernsey

Comments   

# Beth Ewell 2016-12-02 17:11
Thank you for sharing. We meet so many patients and some we never see again. It is such an inspiring story.
Reply | Reply with quote | Quote
# Warren Holleman 2016-11-29 11:56
Thank you for sharing this story. I found it very powerful and inspiring. Your experience affirmed that even when we don't see the fruit of our labor, we need to trust that it really can and does make a difference.
Reply | Reply with quote | Quote
# marcia levine 2016-11-27 13:07
Thanks Victor for telling the story of Anne and her experience with you. I know you and your work and I am so glad to know that Anne was able to find you and let you know how your interventions and your care for her allowed her to lead the life she now leads.It is indeed wonderful to be able to reconnect in this way.
Reply | Reply with quote | Quote
# Roger W Schauer, MD 2016-11-26 23:31
Thanks for sharing. Not an uncommon issue when you listen. The question that broke the ice for me - :what else do I need to know?"
Reply | Reply with quote | Quote
# JOSEPH SCHERGER 2016-11-26 19:49
Thank you for sharing such a wonderful story
Reply | Reply with quote | Quote
# Joseph FENnelly 2016-11-26 17:49
This doctor mines into the central timeless privledge that our profession offers- the opportunity to enable the soul, The pain, the meaning of the 'other'- between person and person. He carefully ventured into and through the dark regions of fear and need to pay ahead by opening a door for this patient to prosper. Bless him.
Reply | Reply with quote | Quote
# Louis Verardo, MD 2016-11-26 12:20
What a wonderful story to read on Thankgiving Day weekend. How special to hear from a patient whom you treated more than 30 years ago and to have her tell you how much your care and those of your colleagues meant to her. These moments are what we live for as clinicians and are difficult to quantify, but they speak to the essence of our professional work.
Reply | Reply with quote | Quote
# Pris Campbell 2016-11-26 11:40
Thank you so much for this story. I have tears in my eyes. By following his gut and trusting his observations he saved this woman!
Reply | Reply with quote | Quote
# Leslie Kassal 2016-11-26 06:34
I too was in a psychiatric hospital, when I was 16. I was there for 10 months, was treated for primary anorexia nervosa, and neurotic depression (as they were then called in 1967), I was also worked with a second-year resident, at New York City's Payne Whitney Clinic. I have never been able to thank my doctor adequately, but perhaps gratitude is seen, truly, when the patient lives, and thrives, as did Dr, Fornari's patient. My doctor listened to me weep in session for months. My sadness seemed to know no end. ....I went from the hospital to my freshman year of college. I am now 65 years old, but that time in the hospital was tender, and sweet, despite my pain. I remain in therapy and am blessed. I have met Dr. Fornari, and I thank him for relating this story. It is a familiar one for me -- of great difficulty, of receiving extraordinary care, and then -- of continuing your life journey.
Reply | Reply with quote | Quote
# Donna Parker 2016-11-26 03:22
Thank you for sharing this beautiful reflection on the impact impact of a caring physician. He did what was best for the patient, although he did not know the details. He knew that her home was not the best environment for her.
Reply | Reply with quote | Quote
# Maury Cralle 2016-11-26 00:00
Thank you for a moving and touching true story.
People who hurt children are without doubt sick and we should feel sorry for them.
But their sickness hurts so many innocent people that there must be a special place in hell where they have to go to be rehabilited.
Reply | Reply with quote | Quote
# Sterling Haynes 2016-11-25 21:44
Thank you Victor for your well written story. Your reflection has, I am sure, touched all of your readers. Perhaps we might look for a collection of your stories in a memoir in the future.
Reply | Reply with quote | Quote