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Hugh Silk

"Why do you want to go into family medicine?" my internal-medicine preceptor asked.

It was an innocent enough question. I'd known from day one of medical school what I wanted to do, so I answered with confidence, and perhaps a bit of a chip on my shoulder.

"I love being with people and getting to know them," I said. "I've always been this way, so it makes sense that's what I would do for my career. I'm looking forward to having the long-term relationships and seeing where they go."

A raised eyebrow, followed by his knowing Irish brogue: "I applaud that. My own father was a GP in Ireland. But I'm afraid you won't find much of that in one month on the wards. This will be a chance, however, to learn your medicine well."

With that, he was off. Knowing that he was a master of the clinical exam, I believed that he was referring to learning to appreciate the difference between crackles and wheezes, knowing how to manage a diabetic crisis, or maybe even doing something as complicated as interpreting the dreaded blood gas.

Yet on this rotation, as on every other, I felt determined, first, to suck the knowledge out of that specialty for later use in my career; and, second, to achieve my own goal of offering a family-medicine style of care to every patient. Even as a third-year student, I'd seen how my family-medicine mentors could meet patients where they lived, look at their illness within the bigger picture of their lives and families, and offer a comforting voice or gesture at the right time. I refused to let down the giants of my soon-to-be profession by focusing just on "the medicine."

And so a challenge to that end was dropped into my lap. Literally.

John was a large man. Not necessarily obese or fat, but simply thick all over. Lifting up his leg felt like lifting a soggy log. I've never figured out why some people seem heavier than others who weigh the same, but I know it to be true.

In the emergency room, I was called over to meet my new patient just as he began to spill out of his stretcher. My timing was spot-on: Rushing over, I used my body to pin him against the side of the stretcher, averting a catastrophic fall.

I soon learned John's history from his mom. At seventy-five, Mrs. Taylor had spent a lifetime devoted to her only son. She'd outlived her husband, so the effort was all hers now.

Born forty-eight years earlier with Down syndrome, John had not been expected to live a long life, she told me.

"I would have none of that talk," she added. "John was my baby, and he was strong. He's been a handful, but I knew he'd get through it." She paused. "Until now."

Her last two words hung in the air. It would have been easy to plow ahead, obtain his past medical history and his family and social history, and complete the admission. However, a mentor of mine had always said, "Let the story go where it wants to go, or you'll miss the important stuff; you can always come back for the details."

"Until now, ma'am," I said. "What do you mean?"

"What you young doctors don't understand is that when a child with Down syndrome survives childhood and makes it to this age, Alzheimer's is the cruel reward," she answered. "John can't do anything for himself anymore, and I'm too frail to do it for him. He hasn't been right for months, and now here we are. I don't know what you can do."

Hours later, it became clear that John had pneumonia. Over the next few days, I enjoyed talking with John; his infectious smile lit up his face, and his giggle made it even more delightful.

"John, you make me smile. You're too much," his mom would chide.

"You're much too much yourself," he'd reply with a grin.

As the days turned into weeks, it became apparent that being bedridden in an unfamiliar place was only making John's condition worse.

Even as he gradually stopped talking, I grew more attached to this mother-son duo. I felt touched to see John's mom wash his hair and clip his finger- and toenails: John wouldn't lose his dignity on her watch. As he slipped into a coma, she read to him every day and held his hands lovingly at night.

I spent far too much time sitting with them each afternoon. I had labs to track down and notes to write; I had "medicine" to learn, with X-ray reviews and chief-resident pimping sessions. But as I look back now, I know that everything I use in providing care day to day, I learned at John's bedside.

"I don't know how I'll ever know enough to be a good doctor," I told a family-medicine preceptor. "I just can't cram it all into my head. The other day someone was talking about a basal skull fracture, and I realized I knew nothing about that."

"What did you do?" he asked wisely.

"I ran to look it up."

"And that's what you'll do in the future. These aren't my words--Dr. Francis Peabody said them--but I think they're true: ‘The secret of the care of the patient is in caring for the patient.' You'll look stuff up; you'll offer comfort; you'll spend extra time with the patient if you have to. Be wary of the doc who knows everything about a basal skull fracture; he might not do those other things that will make the difference."

As I sat with John and his mom and talked and listened, I knew my preceptor was right.

I think it was the extra time I spent that led Mrs. Taylor to open up to me one evening as I got ready to head home.

"He's not going to wake up, is he?" she asked, stroking John's thick grey hair.

"I'm pretty worried that you're right. He's had all the antibiotics, fluids and tests, yet he's not coming around."

"I'm so grateful for your care this past month. I know you tried your hardest." She paused. "Do you know what I struggle with most?"

I shook my head.

"That this is a good thing for John and me." Another pause. A tear. Another tear.

"I've worried for almost fifty years about what would happen if I died before John. Who would take care of him? Of course, I didn't want anything bad to happen to John. We've had a special life together--no one will ever understand that. But his dying will relieve my worry. His dying will mean that he'll be okay, actually."

I'd never heard someone say something so complicated and yet so true.

"It's time," she said.

We offered John morphine. He died twenty-four hours later--one day before the end of my rotation.

I'm not usually someone who hugs strangers or patients, but I hugged Mrs. Taylor before she left the hospital. I'd said goodbye to John the night before. It was the second time I'd cried in medical school. It would not be the last.

"Well, Silk, you proved me wrong. I'm a big enough man to admit it," bellowed my Irish preceptor. "You learned more about continuity of care this month than I thought you would."

I grinned.

"But," he added, "I still think you learned a lot of medicine."

As I got onto my bike to ride home, I had a thought: For me, learning a lot of medicine had absolutely required that my care for John should include long conversations with his mom at the bedside. And that was the kind of family medicine I knew I needed to practice.


About the author:

Hugh Silk is a professor in the department of family medicine and community health at the University of Massachusetts Medical School, a medical director in the school's affiliated Primary Care Wellness Center/Community Healthlink system, and FCC site director for the Harvard School of Dental Medicine. "My original interest in writing came from working with Robert Coles after college and helping to teach a course on the literature of social reflection. I loved seeing how George Orwell and Flannery O'Connor gave life to voices not usually heard. I wrote this particular story because, nineteen years later, the Taylors' faces and sentiments still stick with me as I see patients."

Story editor:

Diane Guernsey

Comments   

# Betty Reiser 2017-03-07 13:11
So moving and heartfelt. Here is an example of what medicine should be all about, caring for the total person with compassion, empathy, sensitivity alongside the necessary medical skills to provide the care needed at the particular moment. This doctor met all of the requirements "in spades". Thank you.
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# Anita Blakeslee 2016-08-18 18:47
Thank you for sharing this, what a wonderful gift you gave John and his mother. I can only hope when the time comes for my now 26 yr. old daughter with DS that I will have a doctor as caring and compassionate as you.
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# Warren Holleman 2016-08-10 11:17
I love your story, and I love the comment your mentor taught you about staying with the patient's story: "Let the story go where it wants to go, or you'll miss the important stuff; you can always come back for the details." Wow!
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# Muriel Murch 2016-08-08 05:40
Thank you for this story. Love your teacher. 'Stay with the patient and look up the other stuff later.' Yes, (Says this old nurse)
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# William R. Phillips 2016-08-07 21:37
Beautiful story, beautifully told.
How long does it take us lo learn to hug our patients?
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# alice fornari 2016-08-07 21:09
every student contemplating family medicine should read this story-brilliant ly told and so moving and truth telling of the profession-than k you
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# Hilton Koppe 2016-08-07 03:53
Thank you Hugh for your beautifully written evocation on humanity in medicine. Your students and residents are indeed lucky to have someone who can teach them that in the long run, it is at least as important to learn about the person who the disease, than it is to know about the disease the person has. And so much more sustaining for meaningful career in family medicine too. Thanks again.
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# Sara Taylor 2016-08-06 17:19
Thank you for sharing this absolutely beautiful narrative! You really emphasized the heart of medicine that can be overlooked in search of investigations and treatment - the relationship between patients and their families.
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# Lois Gerber. 2016-08-06 11:58
Love your story. So appropriate for nurses, too, especially home health care ones. Humanity at its best.
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# Henry Schneiderman 2016-08-05 21:07
Beautiful story, beautifully told. I wish this writing could be read by every practitioner and student, but more, that it could be imprinted on their spirits. This so fits the mission of Pulse as being "from the heart of medicine". This is what gratifies every true healer of whatever stripe, says this internist! And how well said about knowing the skull fracture and not how to be with, and to support, human beings in trouble. Bravo!
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