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Ashley, my youngest daughter, has a genetic condition so rare it is still considered “incompatible with life.” Yet today, Ashley is twenty-five, and she hasn’t just survived. She rides horses and she competes in jazz dance recitals with her many friends with intellectual disabilities. When she gets a new dress, she twirls while modeling it for strangers, as if she is on Next Top Model. At age four, she made the front page of our local newspaper because she was so darned cute gritting her teeth as she pulled her walker toward the finish line in her first Special Olympics race. Surely,
In accordance with my faith, I lit a memorial candle for my beloved father this morning; it is four years today since he died in my arms. The candle will burn for more than twenty-four hours. Not only does it remind me of the grief I still feel, but it also represents the light that was my dad–and his fervent wish that I would persevere by embracing the opportunities that life offers.
“Use the room over there,” she said, pointing towards the closed door to my right and handing me a clear, plastic cup with blue-twist top. “When you’re done, open the slot behind you, place the sample and close the slot door.”
It’s opening day at my cancer hospital. First peek into my innards is a urine sample, checking for protein. Too much excreted protein may signal kidney disease, a death knell to my upcoming cancer treatment. Which would in turn mean a death knell for me. The urine sample will be followed by a needlestick into one