logo 2252

Welcome to Pulse

Telling the personal story of health care...by and for everyone--patients, health professionals and students of narrative medicine.


new subscription

Join the 11,000+ who receive Pulse weekly

energize subscription 
Stop by the
Pulse newsstand--
Your contribution will
keep Pulse vibrant!

Energize your subscription

Our goal this year:
500 energized subscribers

So far:  37

Short pieces on a new theme every month
This month...

Carol Scott-Conner

"The plastic surgeons tell me that women who like to swim do much better with reconstruction than with prostheses," says a young breast surgeon at our weekly Breast Cancer Tumor Board, the working conference where we discuss every new breast cancer patient before starting treatment.

There's a slight note of surprise in her voice; to her, it's simply another consideration when advising women before mastectomy.

For decades, the only option after a mastectomy was a prosthesis, or breast form--something shaped and weighted to fill the empty cup of the brassiere and lie, more or less comfortably, against the chest wall. I sometimes tell my patients that using a prosthesis is a bit like going back to the days when we were little girls, stuffing our bras with tissues or old socks to fill them out.

But now, women have choices. The plastic surgeons can reconstruct the shape of the lost breast. A woman can look at herself in the mirror and feel whole. From the outside, in clothes, no one can tell the difference. And there's no need for a breast form. But it's a lot more surgery.

So, in fact, most women do best with reconstruction. There are plenty of studies that show that. And swimmers, in particular, don't do so well with prostheses.

All eyes swivel to me.

At sixty-seven, I'm the senior breast surgeon and the leader of Tumor Board at my Midwestern medical school. When I was diagnosed with early-stage breast cancer, a year ago, I had my surgery at my home institution, gladly sacrificing anonymity to stay with the familiar hands, brains and hearts of the best team in the region. I've never regretted that decision. But there are moments, like right now, when I'm unsure whether to respond as the surgeon or as the survivor.

The surgeon in me answers.

"It's absolutely true. The survivor literature is replete with accounts of breast prostheses floating away, heading in the other direction from the swimmer. It's a simple mechanical problem, and I don't understand why they haven't solved it yet."

For sure, swimming is a mechanical stress test for a breast prosthesis, between the repetitive arm motion involving the pectoral muscles (on which the prosthesis sits) and the lubricating effect of water. A prosthesis that works well for ordinary wear may not swim well.

If you wear a prosthesis in the swimming pool, you run the risk that it will slip out and either (a) sink to the bottom of the pool, to lie there like a dead sea-slug until retrieved, or (b) float away, possibly to surprise the next swimmer in line. Neither option is appealing. And it's unlikely that your insurance company would pay another couple of hundred dollars for a replacement.

So swimmers have devised various strategies in response. Many women simply use a plastic shower sponge. Cheap, compressible, lightweight and fast-drying. At least one woman in California has had garlands of flowers tattooed across her chest where her breasts used to be and surfs topless. But things are a bit more conservative here in the Midwest.

All of this runs through my head, and more.

When I was diagnosed, I decided on a mastectomy without reconstruction. (Like most women surgeons, I knew what I'd choose long before I was ever diagnosed.) I'm small-breasted, so mastectomy without reconstruction was a relatively easy choice: I wanted to minimize the amount of surgery and maximize my chances of returning to a normal life fast. I sometimes joke that now I'm flat on one side, and flatter on the other.

"But it's not the prosthesis, it's the scar," I say.

Expectant silence. Some members of the group know that I elected a mastectomy without reconstruction; others have probably heard parts of my history and are curious about the rest. But only my own surgeon knows that I love to swim--and that I don't use a prosthesis, even in a swimsuit.

The silence deepens. Instead of elaborating further, I take a deep breath and call for the next case.

But my mind lingers on the question no one has asked: "How is it for you?"

In the pool, it's really very simple. I hide the asymmetry with a towel slung over one shoulder, stride to the pool's edge, drop the towel, and hit the water with a distracting splash. Keep moving, hold your head high and just act natural.

The real problem for me isn't the prosthesis but rather the cavernous open space of the women's locker room. Amid the mix of body types in that room, I have never seen another woman with just one breast.

Even the jolly, overweight ladies of the arthritis swim class, who towel off with gay abandon, chattering like a flock of sparrows, unabashedly display rolls of flesh, varicose veins, cellulite, wrinkles and gray hair. But they all have two breasts, and, as best I can tell, both are the breasts they were born with.

Alone among them, I turn my back, restrain myself in mid-stretch and furtively slather moisturizer over my scar.

Alone, in my own bathroom, I look at my chest. I'm not revolted, simply surprised. It's so easy to forget that I had breast cancer...that I have breast cancer? I'm not sure where I am on the patient-survivor continuum just yet.

The physician in me thought that I had accepted my new body image. Now I find myself wondering: Why do I hide my scar?

The swimming pool has wheelchair ramps and chairlifts for the physically disabled. It's the law. Are the scarred and maimed a last bastion of prejudice? I ask myself. What impels me to hide? Is it the same instinct that held me silent during Tumor Board?

I guess I'm just not ready to talk about it--to answer the inevitable questions: "Did you have cancer? Are you a survivor? How many years? Oh, my sister (aunt, mother, best friend) had breast cancer, and she's done well for ten years now (or she died after just five years)...."

Like many surgeons, I'm superstitious. If I call myself a survivor, that might tempt the cancer to recur: Call yourself a survivor, do you? Well, I'll show you! On the other hand, calling myself a breast-cancer patient implies that the cancer is still there. "Name the devil and he will come," my grandmother used to say.

If pressed, I would call myself a survivor.

Once, at the pool, I saw a young amputee shed her below-knee prosthesis at the far end and hop deftly to the water's edge with agility and confidence. In the water, she reminded me of Nemo, the little cartoon fish with a stunted fin on one side. And then I lost sight of her, surrounded as she was by the other swimmers.

Maybe, some day, I can be brave and step confidently out of the shadows like her.

About the author:

Carol Scott-Conner is professor and former head of the department of surgery at the University of Iowa Carver College of Medicine. “As I grew older, I turned to creative writing as a way of conveying the rich and varied experiences I have had as a surgeon." A collection of her short stories was published as A Few Small Moments; other stories and works are posted on her Authors Guild website, scott-conner.com.

Story editor:

Diane Guernsey


# Kathy Hanson-Morris 2014-04-21 11:17
Beautiful and heart-felt! Thank you for sharing. I realized this am as I got ready for work that I seldom look at my naked chest in the mirror, with its t-shaped mastectomy and reconstruction scars, now faded tatoo nipple and mis-shapen implant. And, yes, I also turn my back in the health club locker room. Even 6 years out, I do not think of myself as a breast cancer survivor, but as a survivor of many things in my life. I am just me, shaped by my experiences-and not defined by any 1 event in my life. Thank you again for opening your heart to all who choose to read your story--and I hope that is many!!
Reply | Reply with quote | Quote
# June Rose Dowis 2014-04-20 11:01
Thank you for sharing both as a woman and as a surgeon. Much to think about.
Reply | Reply with quote | Quote
# Jean Miscall 2014-04-20 10:41
Thank you for telling us of your experience in such an honest and uncomplicated way. I, too, went through the mastectomy/reco nstruction conundrum and opted for your choice as well. I wanted NOT to go back to the OR any time soon...just wanted it all to be over and quickly! I'm also small breasted but not a swimmer....just a 71 year old woman who wanted to be normal and healthy. My lopsidedness was shocking at first but after 9 years it's just me and my very own "normal". Now every time I look at myself in the mirror, it's a reminder to be thankful for the excellence of my surgical/medica l team and thankful to God for my returning to the realm of the healthy! Yeah! Thank you for sharing...makes me feel more certain that my choice was surely the right one---for me!
Reply | Reply with quote | Quote
# Karla Jo Grimmett 2014-04-19 13:35
Thank you for sharing your experience with honest candor and grace. May it bless those who have difficulty expressing these very aspects into words spoken or written. And may you one day, jump in to that pool of water fully integrated giving someone else permission to do so as well.
Reply | Reply with quote | Quote
# Carolyn Thomas 2014-04-19 09:37
Thanks so much for this poignant essay. There's nothing like being a doctor-turned-p atient for developing unmatched empathy for the experiences of what one's patients are going through.
Reply | Reply with quote | Quote
# Rita Ciresi 2014-04-19 09:00
I love the way this piece looks at the issue from every angle. One of the perks of subscribing to Pulse is discovering new authors--I'm looking forward to reading Dr. Scott-Conner's A Few Small Moments. I just wish I could get it on my e-reader!
Reply | Reply with quote | Quote
# Robin 2014-04-19 08:07
Great piece, great insights. Thank you very very much for writing about your unique perspective and choices. Thank you!
Reply | Reply with quote | Quote
# Sandy Rogers 2014-04-19 07:43
Thank you Dr.Scott-Conner.
After my lumpectomy I wore a prosthesis for ten years. It was heavy, hot and a constant reminder of my deficit and disease. Then the cancer returned and I opted for a microvascular reconstruction after the mastectomy.
It was not an expedient solution but worth every inconvenience in recovery. I feel whole and my symmetry has been restored. I highly recommend it for everyone.
Reply | Reply with quote | Quote
# nancy 2014-04-19 07:20
I like this story. It is bold, honest and well written! Thanks
Reply | Reply with quote | Quote

Latest Comments

Pulse Links