fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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fostering the humanistic practice of medicine publishing personal accounts of illness and healing encouraging health care advocacy

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Waiting for the Future to Arrive

After my husband rolled out of bed and onto the floor–a loud thunk at 3:00 a.m.–time moved quickly. Paramedics. Hospital. Unfolding diagnosis: Looks like a stroke. Definitely a stroke. Massive stroke. Decision: No dooming him to a future without movement or speech, without the ability to appreciate sci-fi and Mozart and spring.

Then the waiting began. His brain took its sweet time to ease into the complete and irreversible loss of function necessary for organ donation. In truth it was only days, but each one felt endless. I sat alone. I sat with family and friends. I walked the hospital hallways, trying to create to-do lists through my gray cloud of trauma. Call lawyer. Pick up healthcare directive. Change life plans. I sat some more. Waiting became a way station, a stopping off point where I sat and watched for the arrival of a future I did not want.

Eventually, the spark that was him officially died. On that final day, I shooed away the visitors, closed the curtains in his ICU room and pulled out the CD player I brought from home. We listened to music from his exquisite collection. We talked. (Okay, I talked, but I like to think that,

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The Gift of Today

I’ve spent my whole life waiting. Waiting to join my sisters in boarding school. Then, once I was in boarding school, waiting for the Christmas and summer holidays when we could go home. And all through high school, waiting to go to university, which, in my opinion, would be much better.

When I got to university, I was in a six-year program, so graduation seemed very far off—so I studied and waited and studied and waited.

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Waiting Room Questions

“Happy Birthday!” Those were the first words that met my ear today. They came cautiously, spoken almost like a question. A question that was trying to apologize for its very existence. It did not make sense to me then, and it circles my mind now. I was standing then. I find myself sitting now.

I had walked in the building and entered the elevator an hour earlier. “What floor?” I asked the other occupant. “3, please,” came the reply. I was going to 4. They were never going to 4.

“Have you been tested for COVID-19 recently?” the gatekeeper asked. “Yes. It was positive.” Eyebrows arch. “It is negative now.”

I approached the front desk. The forms they gave me asked me why I was here. I did not know the answer. Rather, I could not comprehend it. “Will you please take a seat?” Gladly. I am exhausted. I thought that was supposed to come after.

Time passes. Happy birthday. Happy birthday. Happy birthday. Around and around the drain it goes.

“How did I get here?” I think to myself. “A car,” comes the sarcastic reply. No. “How did I wind up here?” I look out at the sea of

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Waiting in Darkness, Waiting in Light

January 8, 2016, was a day I shall never forget. I received the news that the issues I was experiencing with my right knee would require a total knee replacement. My primary care physician assured me not to worry: “Everyone has knee replacements.” And so began my period of waiting in darkness. It would last for more than four years.

The first of what would be six procedures was scheduled for two weeks later. Infection set in just four days after my surgery. Oral antibiotics gave me a sense of waiting in light. How wrong I was! Eight weeks of IV fluids were ordered.

Subsequent arthroscopic surgery removed scar tissue and a bone spur. But infection number two reared its ugly head.  Lab tests revealed the infection had spread throughout my body, so the implant had to be removed while a spacer was placed in my leg. Darkness continued, as I remained dependent on others for the next three months. A second round of IV antibiotics led me to depression. Would the light never come?

Knee revision followed. as my leg was cut open for the third time. How many times could skin be cut and stapled? I experienced further

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Healing Through Waiting

Waiting.

Over more than half a century of delivering primary care, I was privileged to be present at moments of profound sorrow and unspeakable grief. Often, these moments came when communicating about a fatal prognosis during a house call after a death had occurred there—whether unexpected or expected, sudden or after a chronic illness.

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Siberia

The appointment with Dr. M. was over in record time, and I texted my husband, “On my way!” as I headed downstairs. Getting out was easier than in, what with the hand sanitizer, temperature check and exhaustive list of questions just inside the narrow entrance. The university hospital was a ninety-minute drive, but we didn’t mind. The leaves were turning, and Iowa City has Indian food and a world-class bookstore.

I walked across the courtyard to the parking ramp, peering down the rows of cars. No blue Subaru. My left foot hasn’t worked right since a fracture five years ago, and that was as far as I could go. I texted again. “I’m ready! Where are you?” Nothing.

What had started as a brisk, sunny day was turning chilly and blustery. Normally, I would have walked back inside to wait in a chair by the window. But the chairs were gone, and the young woman at the door was adamant. “Do you have an appointment?” “Well sure,” I said, “but it’s over and my ride’s not here.” Those were not the magic words. I stood there, confused and shivering in my thin cardigan. I’d had two negative Covid tests in

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Time to See

I’ve been waiting years, so long I don’t even know when it all started. 

I mean I know when I started wearing glasses. I was in first grade, and my teacher took my parents aside. “I think your daughter has a learning disability.” She probably used different words, this was 1968 after all. My parents weren’t convinced and sought out another explanation as to why I was having difficulty in school. Ultimately, they took me to an ophthalmologist who gave them an answer. Within a few months of wearing my new pink princess glasses, I was moved up a grade. 

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Storm Shelter

After his wife died, he changed his mind. “No ventilator,” he told me, shaking his head. “No ventilator.”

And so, I thought, now we wait. He had been prepared to wait for his wife to get better when it was she in the hospital alone. No visitors were allowed, so he talked to her by phone for hours each day, even when neither of them would speak, even when she couldn’t speak; he would listen to her breathing, willing it to ease, to settle into the pattern he knew so well from years by her side.

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Sitting Alone

I was one of two managers covering the hospital one quiet Sunday morning when my pager beeped.

“Cafeteria,” said the voice that answered my call.

 “Hi, this is the nursing manager.”

“A child’s alone down here.”

In the cafeteria I approached the bevy of workers huddled by the phone.

“The little girl’s over there,” one of them said, pointing.

A small child was sitting quietly at a table. She had a round face and light brown hair pulled back with a pink barrette, soft curls falling below her ears. There were no toys or food in front of her. 

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The Waiting Game

 סַבְלָנוּת. The first Hebrew word I learned when I spent the 1972-1973 academic year in Jerusalem was “savlanoot”—patience. I added the word to my Hebrew lexicon, but I never incorporated it into my daily life. I am not a patient person; whether standing in line at the grocery store or checking my mailbox for the results of my mammogram, waiting causes me angst and anger. When I want something, I want it now.

Since the outbreak of COVID-19, however, waiting has become an integral part of my life. I must patiently await the November 3 election, hoping that my candidate wins and that a kinder, gentler nation emerges. I must patiently await tomorrow, hoping that it will bring me something to do that today has not provided. I must patiently await phone calls: ones telling me that my children have jobs and that their lives have somewhat returned to normalcy. I must become a player in the waiting game, even though every part of me shouts “No!”

As I head into my seventh month of quarantine, I have learned that how I handle waiting better helps me deal with the waiting itself. By walking for an hour every morning,

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An Editor’s Invitation: Waiting

Dear Pulse readers,
We are waiting.
Waiting for an election that is very close–already happening in some states–but still feels far off.
Waiting for a pandemic to come under control.
Waiting for systemic racism to be fully acknowledged and met head-on.
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